Table 4.

Annual indirect costs of nephrotic syndrome

ActivityAdult (N=28)Family Caregiver (N=17)
# Reporting, n (%)Time Reported Median (Interquartile Range)Time Costs (US$) Median (Interquartile Range)a# Reporting, n (%)Time Reported Median (Interquartile Range)Time Costs (US$) Median (Interquartile Range)a
Emergency room, h4 (14)7.4 (5–10)222 (150–300)1 (6)5 (5–5)150 (150–150)
Hospitalization, d7 (25)4 (2–13)960 (480–3121)4 (24)2.5 (1–4)600 (240–960)
Nephrology visit, h26 (93)2.5 (2–4)75 (60–120)16 (94)3.5 (2–4.1)105 (60–123)
Primary care provider visit, h22 (79)1.3 (1–2)39 (30–60)16 (94)1.5 (1–2.1)45 (30–63)
Specialists visitb, h11 (39)4.5 (3–7)135 (90–210)7 (41)4 (1.8–5.5)120 (54–165)
Other services visitc, h7 (25)19 (17–30)570 (510–900)3 (18)3 (2.4–6.5)90 (72–195)
Traveling and shopping for special foods, h14 (50)19 (3–48)570 (90–1440)12 (71)12 (4.6–45)360 (138–1350)
Planning and preparing special meals, h13 (46)183 (114–331)5492 (3421–9933)10 (59)173 (84–205)5,204 (2509)
Speaking with insurance, h26 (93)0 (0–1)0 (0–30)17 (100)0.5 (0–1.5)15 (0–45)
Work reduction, h6 (21)9 (4–18)270 (120–540)2 (12)10 (7.5–12.5)300 (225–375)
Work absentee, d28 (100)1 (0–12)240 (0–2881)15 (88)5 (0–9)1200 (0–2161)
School absentee, d8 (29)4 (2–9)0 (0)
Blood draws26 (93)12 (8–13)360 (240–390)16 (94)5 (3–7)135 (90–195)
  • a $30.01 mean hourly earnings 2021 in US$.

  • b Specialists include geneticists, cardiologists, dermatologists, pulmonologists, and optometrists.

  • c Other services include nutrition counseling, genetic counseling, behavioral therapy, social work, and the dentist.