Table 1.

Participant demographics

DemographicsAll (N=45)Respondent Type
Adult (N=28), n (%)Family Caregiver (N=17), n (%)
Women34 (76)20 (71)14 (82)
Race and ethnicity of respondent
 White, not of Hispanic origin35 (78)20 (71)15 (88)
 Asian/Pacific Islander3 (7)3 (11)0 (0)
 Black, not of Hispanic origin2 (4)1 (4)1 (6)
 Hispanic4 (9)4 (14)0 (0)
 Mixed1 (2)0 (0)1 (6)
Age at survey completion, yr
 18–2913 (29)12 (36)1 (6)
 30–3911 (24)6 (21)5 (29)
 40–5916 (36)6 (21)10 (59)
 60–795 (11)4 (14)1 (6)
Education of respondent
 High school/GED10 (22)6 (21)4 (24)
 2-year college/trade school/college certificate10 (22)7 (25)3 (18)
 4-year college16 (36)13 (47)3 (18)
 Master’s degree5 (11)1 (6)4 (24)
 Doctoral or professional degree (e.g., MD, PhD, JD)4 (9)1 (6)3 (18)
Employment status of respondent
 Employed full time (≥40 hours per week)21 (47)13 (47)8 (50)
 Employed part time (<40 hours per week)10 (22)7 (25)3 (19)
 Not employed outside of the home14 (31)8 (29)6 (31)
Insurance
 Private insurance35 (78)23 (82)12 (75)
 Public insurance12 (27)7 (25)5 (42)
 Children’s Special Health Care Services6 (13)1 (4)5 (42)
 Self-pay or out-of-pocket1 (2)1 (4)0 (0)
Household income, US$
 ≤15,0003 (7)3 (11)0 (0)
 >15,000 to 25,0004 (9)2 (7)2 (12)
 >25,000 to 35,0003 (7)3 (11)0 (0)
 >35,000 to 50,0007 (16)4 (14)3 (18)
 >50,000 to 75,0007 (16)5 (18)2 (12)
 >75,00021 (47)11 (39)10 (59)